National Data Guardian publishes findings from its citizens’ juries on data sharing in a pandemic
The National Data Guardian has published the findings from its citizens’ juries public deliberation project, which it co-commissioned with the National Institute for Health Research Applied Research Collaboration Greater Manchester and NHSX earlier this year.
The project’s focus was data sharing in a pandemic.
The juries each spent eight days listening to evidence and deliberating on three national data sharing initiatives which were introduced to tackle the pandemic. The juries concluded that the government was right to use emergency powers to share patient data during the Covid pandemic but greater transparency is needed.
Download the Executive Summary here.